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Here at Touch Medical Media, we are supporting Rare Disease Day (28 February 2022) to shine a light on the experiences of people living with rare diseases, to improve awareness, encourage early diagnosis and tailored care.<\/span><\/p>\n Prof. Jackie Palace Improving diagnosis and treatment of neuromyelitis optica spectrum disorder<\/span><\/a><\/span><\/strong><\/p>\n Dr Richard Keen <\/strong>Rare bone diseases – Diagnosis, management and patient quality of life<\/span><\/a><\/span><\/p>\n Dr Spero R Cataland <\/strong>Acquired\/immune TTP – Risks, complications and the impact on daily life<\/span><\/a><\/p>\n Prof. Said Beydoun <\/strong>Understanding myasthenia gravis and the impact on patients\u2019 quality of life<\/span><\/a><\/span><\/p>\n Prof. Damara Ortiz <\/strong>The impact of Pompe disease and the importance of newborn screening<\/span><\/a><\/span><\/p>\n <\/p>\n Ethan Crough <\/strong>Living with achondroplasia – Celebrating diversity and increasing awareness<\/span><\/a><\/span><\/p>\n Megan Hunter <\/strong>Living with myasthenia gravis – A journey to diagnosis<\/span><\/a><\/span><\/p>\n Shekita Green <\/strong>Living with neuromyelitis optica spectrum disorder – A patient\u2019s perspective<\/span><\/a><\/span><\/p>\n <\/p>\n We hope that these conversations can continue to help support the community, increase awareness and improve understanding.<\/span><\/p>\n <\/p>\n Learn more about our other<\/span>\u00a0Thought Leadership campaigns: <\/span>World Aids Day<\/span><\/span><\/i><\/a>\u00a0 and <\/span>World Menopause Day<\/span><\/span><\/i><\/a>. Please don\u2019t hesitate to\u00a0<\/span>get in touch<\/span><\/span><\/a>\u00a0<\/span>if you want to learn more about\u00a0the Awareness Days we will be supporting in 2022.<\/span><\/p>\n Here at Touch Medical Media, we are supporting Rare Disease Day (28 February 2022) to shine a light on the experiences of people living with rare diseases, to improve awareness, encourage early diagnosis and tailored care.<\/p>\n","protected":false},"author":101775,"featured_media":2536,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[1],"tags":[],"acf":[],"_links":{"self":[{"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/posts\/2535"}],"collection":[{"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/users\/101775"}],"replies":[{"embeddable":true,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/comments?post=2535"}],"version-history":[{"count":12,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/posts\/2535\/revisions"}],"predecessor-version":[{"id":2548,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/posts\/2535\/revisions\/2548"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/media\/2536"}],"wp:attachment":[{"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/media?parent=2535"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/categories?post=2535"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.touchmedicalmedia.com\/wp-json\/wp\/v2\/tags?post=2535"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}We interviewed leading experts covering a wide range of rare diseases:<\/strong><\/h5>\n
Along with content from leading experts in the field, we were honoured to speak with people living with rare diseases:<\/b><\/h5>\n
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